In the past few months, I have gotten to know more people with this condition, Situs Inversus Totalis. It was very exciting to meet these people and build up connections with them. These people have family that are living with Situs Inversus, but with a more complex diagnosis, such as with primary ciliary dyskinesia. After talking and looking at many groups online, I was able to learn about the similarites and differences that we have in our lives.
A few groups online:
- Dextrocardia and Situs Inversus
- Total Situs Inversus with Dextrocardia
If there are any other groups that are bringing awareness about this condition, please don't hesitate to let me know. Thanks!