Mortality Rate/Treatments:  

The prognosis for an individual with Situs Inversus Totalis is good. In the absence of a heart defect or other underlying diagnosis, life expectancy is normal.  

 There is no treatment for Situs Inversus Totalis. However, there are many medicines available to help treat Ciliary Dyskinesia and other long-term effects. In addition, there is no method of preventing Situs Inverus Totalis, as it occurs at birth.

Most people with Situs Inversus Totalis have no medical symptoms or complications resulting from the condition. Only 3-5% of people with Situs Inversus have any type of functional heart defect.  

Resources:

  1. Genetic and Rare Diseases Information Center (GARD) 
  2.  Primary Ciliary Dyskinesia Family Support Group       Website: www.pcdsupport.org.uk
  3. šAmerican Lung Association                                                 Website: http://www.lungusa.org
  4. šPrimary Ciliary Dyskinesia (PCD) Foundation                Website: www.pcdfoundation.org
  5. American Heart Association National Center                  Website: www.americanheart.org
  6. Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation                                         Website: www.kartagener-syndrome.org
  7. Genetic Alliance                                                                      Website: http://www.geneticalliance.org
  8. šNational Organization for Rare Disorders (NORD)        Website: http://www.rarediseases.org/
  9. DNAandU                                                                                 Website: DNAandU.org 
  10. šMadisons Foundation                                                                                                                        Website: http://www.madisonsfoundation.org/  
  11. šRareShare                                                                                Website: http://www.rareshare.org