Mortality Rate:

The prognosis for an individual with Situs Inversus Totalis is good. In the absence of a heart defect or other underlying diagnosis, the life expectancy is normal.  


 There is no treatment for Situs Inversus Totalis itself. However, there are many medications available to help treat Primary Ciliary Dyskinesia and the other long-term effects.

In addition, there is no method of preventing Situs Inverus Totalis, as it occurs during the stages of birth.

Most people with Situs Inversus Totalis have no medical symptoms or complications resulting from the condition. Only 3-5% of people with Situs Inversus have any type of functional heart defect.  


Genetic and Rare Diseases Information Center (GARD) 

 Primary Ciliary Dyskinesia Family Support Group      

šAmerican Lung Association                                             

šPrimary Ciliary Dyskinesia (PCD) Foundation              

American Heart Association National Center               

Kartagener's Syndrome and Primary Ciliary Dyskinesia Foundation                                         

Genetic Alliance                                                                    

šNational Organization for Rare Disorders (NORD)       


šMadisons Foundation